Tuesday, 26 August 2014

One thing leads to another

One Thing Leads to Another - The FIXX

My surgery started out pretty straight forward, and seemed to go as scheduled.    However it lead to a night of a long string of related events.  Once I gain consciousness, the first thing was to check out the work of my surgeon.   Looking down at my chest things were certainly more plane-like.   However there was obvious puffiness in my right breast area.   My reactions were to consider one of the following:

  • my surgeon had forgotten to remove the right breast
  • they had discovered on opening me up further cancer spread and therefore complications with the surgery 
  • the consent form I signed to have the surgery completed was wrong
I waited to hear from the surgeon or anyone in the OR the reason.   Thankfully I was advised it was common; just a bit of excess bleeding that would be absorbed by my body and as a result  blood back into my body.  I'd be pancake like on both sides in no time.  So, surgery fine but excess bleeding.

On the surgical floor there is continual monitoring which means constant interruptions through the day and night.   Result, very little or no sleep.  

As we are under a public health system, most hospital accommodation is on a ward - 3-4 beds per room with mixed gender.    I was with 3 others so that meant that everything going on with the other 3 become my business whether I wanted it or not.   As a result, more interruptions, noise and activity further creating complications for attempts to sleep.

To help manage the physical effects of being cut open, pain medication is provided regularly as a matter of rote.    For me, pain medication of any type results in fuzzy brain, no matter how mild the strength.   So no pain results in no brain but can help with sleep, however the sleep is drug induced so not very restful.

Over the next hours, the nurses, on-call surgeon and, of course, I waited for the bleeding to stop on its own.   In the meantime, the pressure built under my skin on my upper chest and arm pit as the fluid collected internally.  

So, by 'lights out' I am building pressure from the ongoing bleeding, aroused every 3-4 hours to check vital signs and in a drugged haziness.   Add to that gas and sore throat from being under anesthetic.

By wee hours of the morning, I had lost enough blood that my body went into shock.   So added to the above I was dizzy, in a cold sweat and freezing - teeth chattering freezing.    

 There was a student nurse assigned to me along with the regular nurse.   She was great but student means that everything takes that much more time as every procedure is reviewed and questions asked.    That meant for the surgery prep - the catheter was attempted - 3 times.  I'm all for on the job training so I bit my tongue - likely literally - and 'high fived' her on final successful attempt.    Way to go Heather!

Out of surgery and back to my surgical bed by early morning for yet another night in hospital.

So, to summarize the chain of events - (If I could put in a process map I would):
surgery = bleeding = drop in blood pressure
             = pain, gas, sore throat
pain = medication = monitoring = no sleep
drop in blood pressure = shock
shock = chills and sweating
bleeding = additional surgery
additional surgery = one more night in hospital
night in hospital = no sleep, more medication

It could almost make 6 months of chemo seem like a breeze!

Next up a few weeks of healing and then we jump on the radiation train.


Monday, 18 August 2014

Where everybody knows your name

Where everybody knows your name - (Cheers Theme) - Gary Portnoy

The lab at the hospital has become just that place - the place where they all recognize me and know my name.   They greet me as I come into view and look at me with that 'weren't you just here' look.    They know the temperament of my veins, which ones are prone to cause trouble and just the right sized needle to use.   (I apologize to the needle squeamish in the crowd).  Quite fitting (with the bar theme) that I'm running my own little draft bar for them dumping vials of plasma at will.    Will that be a glass or a half litre of the red stuff?

I go there every three weeks to get regular blood tests but lately I've been doubling up on that.   Every time my blood levels drop, it means more blood tests so more blood drawn.   Add to that the pre-surgery prep and retests and I've had blood drawn 5 times in the past 10 days.   I'm considering charging them a small fee for each vial.   They pay for your blood in the U.S. don't they?

Friday, 15 August 2014

Celebrate Good Times!!!

Celebrate - Kool & the Gang

There's a party going on right here.   A celebration to last throughout the years!

Yahoo!!!   Finished my chemo!!!    Six months of chemo treatment under my belt with only a few hiccups along the way.   I was fortunate not to have any trips to the emergency or hospitalization, which can be common.   Celebrate good times, come on!   

In some chemo centres there is a tradition to ring a bell when you finish your chemo treatments.    It's not a tradition at the centre I attend.    Don't worry, there were bells rung at home and a far when the treatment ended.    Everything from Christmas bells, tinker bells to bear bells.   Let's celebrate, it's all right!  

Thanks to all the family and friends who carried me through that journey both with physical and spiritual presence.  Every little bit helped. Everyone around the world, come on!  

I can see you dancing!!!!!

Saturday, 9 August 2014

Hit me (baby) one more time

Baby One More Time - Britney Spears

Here we go again.  Another delay with my treatment.    The white blood cell counts were took a big nose dive this past week and once again my treatment has been cancelled - put off for another week.   To take a favorite saying from my family's past - "Poop, Bum, Scum"!!!!   -much safer than saying 'shit' in our house and I think a bit more colourful.

So, I'm still waiting my last chemo treatment.  Honestly, I'm not trying to drag this out any longer just going with the flow.   I'm back to the daily stomach injection of white blood cell boosters.   It's a bit of a hassle but the good news is that I go to this great clinic for the shots and the doctors there are great.   I get 3-4 different doctors in a week which is typically not considered to be a good thing but since they are only giving me a shot, I'm not looking to them for medical advice.    Instead, I gain the wisdom and experience from these doctors who have all taken the time to chat with me and support me.   I take away little pearls of wisdom with each short visit.   It's like speed dating for a doctor.   If I was in the market for a new one this would be the way to do it.